In this episode of AS Info Share, we sit down with patient advocate Michael Mallinson to discuss an important event for the Axial Spondyloarthritis (AxSpA) community—World AS Day. Observed each year on the first Saturday in May, this global awareness day brings together patients, advocates, and organizations to raise awareness, promote education, and support those living with Axial Spondyloarthritis, formerly known as Ankylosing Spondylitis. Michael shares insights about the significance of the day, why the name of the condition has evolved, and how events like Walk Your A.S. Off Day help build community and encourage advocacy.
Because Michael shared so much valuable information, we’ve decided to split our conversation into multiple episodes, each focusing on different aspects of living with and advocating for those with Axial Spondyloarthritis. In this installment, we focus on awareness and the importance of the global AS community coming together. Be sure to tune in to upcoming episodes as we continue the discussion, covering topics such as patient education, advocating for yourself when dealing with dismissive healthcare providers, mental health support, and the unique challenges women face in getting diagnosed and treated.